TDS vs BDS, Part 2

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Welcome to Part 2 of TDS vs BDS Climate Change You might consider climate change to be a crisis. I once did. I still consider it to be an urgent problem. But I also think we have quit considering the … Continue reading

The Dark at the End of the Tunnel

I’m beginning to see the dark at the end of the tunnel. Life is not returning to normal. We will never eat out again without observing how crowded the room is. We will never get on a bus without a mask. Every sniffle or scratchy throat will prompt us to find a rapid test for Covid. A positive test will send us into isolation, a negative test will comfort us only until we reach for the rapid test again in a few days.

Our lingering winter weather has kept us from some of our normal springtime outings. I’m sure that’s affecting my mood. A tour of the shops of one of our nearby tourist towns is a frequent February treat. Not this year. Yes, the buds are swelling on trees in our next door park, but we haven’t walked past them as often as usual. But it’s March now. Time to get out and about. I think we can. I think we can. I think we must!

Meanwhile, a new publication from Cochrane, a highly regarded research  firm in the UK, assures us that masking to prevent the spread of Covid is useless. They say this even though two studies specifically related to Covid show a positive effect of masking. Other studies occurred prior to Covid and were crappy studies. 

Furthermore: I have proof that masks work. Yes, I do. And here it is: I live in a retirement community of nearly 500 residents. We have 200 staff people who come and go each day. Due to low rates of Covid, residents dropped their masks many weeks ago. Employees were required to continue wearing masks at work. All employees. All day. Every day. Residents could or could not wear masks, up to the individual. Activities had returned to normal, meaning lots of in-person meetings – instead of Zoom – in large rooms and small. 

Guess what happened? We slowly began to see cases of Covid, most contracted outside in the real world. Our Covid trackers didn’t see much passing from resident to resident. Until the Super Bowl. Can you imagine a more perfect setting for spreading Covid than Super Bowl parties. Bunching up on sofas, eating, cheering, spreading germs with abandon. We had grown so lax that our neighbors had parties here, or went out to party with family. And then we had an explosion of Covid cases within our community. But guess what. Staff were immune to all this. Yes, we had a handful of staff who tested positive, but just a fraction of what was happening with residents. How could this be. My guess is that masks work.

Fortunately, most of our neighbors have had mild cases of Covid, but at least four have been sent to the hospital. No deaths yet from this current outbreak, but it’s early days. It often takes a while to die from Covid. 

My advice. Continue to mask up in stores; avoid eating out with crowds; test early if you have symptoms so you can call your doc and get Paxlovid. Good luck.

I Wish I Were Sick

Seriously? Nobody wishes they were sick. Well, maybe when you were a kid, and you just didn’t want to do something such as go to school. But now we’re all adults, and we don’t have to go to school if we don’t want to. So what’s going on here? 

As I was waking up this morning, I moved around in bed to see if the vertigo was acting up. Yep. How about brain activity: present or absent? Present but minimal. Energy? Ha. Lost track of that months ago. Should I call the doctor? Ha. I could say something like, “I don’t want to go to school today.” And she’d say: “Get dressed and get out of here.” 

Seriously. What is this? Is this what it feels like in the months leading up to a diagnosis of something serious? Or is this what it feels like to have one of those chronic things that never gets a name? If it’s the former, OK, great. At some point, I’ll get a diagnosis, and the amazing American medical machine will gear up to poke me and prod me and take images of me and schedule one appointment after another and rack up amazing bills, and maybe it will all work and I’ll get cured or at least get better. 

But: if this is a chronic thing that never gets a name, then what? I could spend my own money trekking around town to various people with various titles (some they’ve bestowed on themselves) who want to sell me various products or procedures or tests that will give me ambiguous results but fail to give my condition a name or a cure. Or maybe they’ll give it a name, but not a cure, but I’ll convince myself I’m just enough better to justify spending yet more money on their tests, products, or procedures. Or maybe I’ll just settle in for the long haul. 

Long Haul? Isn’t that one of the names given to people who caught Covid and failed to fully recover? Yes, Covid Long Haulers. Am I one? I don’t think so. I caught Covid in early August, got Paxlovid, and recovered quickly. Did I recover fully? Yeah, I think so. I don’t remember feeling like this, but we were traveling at the time. When we got home, I was tired from traveling, as usual. I didn’t have vertigo then. I’m not sure what it would feel like to have a fully functioning brain because I’m a bit scattered in the best of times, but I think I felt OK. I was still taking walks back then, so I had some amount of energy. 

But then there was that Covid booster in mid-October. I’d had a bit of vertigo before that, but only as I was going to bed. It wasn’t interfering with anything. Then, the day after the booster, I was sicker than I can describe with the most intense vertigo ever. Better the next day, and the next. Then I saw a PT and got worse (yes, worse). ER, Rx for nausea, and it’s been on again/off again since. I had 48 gleeful symptom-free hours following a massage, but then it’s been on again/off again since. My walking stick is by the door for days like today when I don’t even want to walk to the elevator without it. 

A friend with ME/CFS loaned me “The Invisible Kingdom: Reimagining Chronic Illness” by Meghan O’Rourke. Am I just trying on the experience of chronic illness which she so articulately describes? Oh, please, no. If so, I don’t want this role! Let me out of here! I’ve had other experiences that have taken months and months to right themselves (broken leg, broken foot). But they were so definitive: See this fracture here on this X-ray? We’re going to fix it! And yes, eventually, I was fixed. 

Today, I’m wondering if this was how my father felt in the months before he was diagnosed with a form of chronic leukemia. Was there just a malaise that slowly settled over his life? Was there a pain that couldn’t be attributed to anything in particular? Was his brain less clever than it had always been? I wasn’t home then, so I don’t know what the prelude was like. But today I wonder.

I have a previously scheduled appointment with my primary care doc in two weeks. I’ll find out if the lung nodules that appeared in my ER X-ray have resolved. I’ll tell her that the physical therapist who specializes in vertigo has told me he has no new ideas to resolve my persistent vertigo. I’ll tell her that when my brain is working so hard to figure out where I am in space, it can’t seem to do anything else I want it to do. And I’ll tell her that I don’t want to be chronically ill. What ideas will she have for me? Anything useful, or just a shrug?

Fall Colors and Good News

Was fall a long time coming this year? We had such warm weather during the first half of October that the trees seemed to hang onto their greenery a bit longer than usual. And now it’s the middle of November when a wind storm has usually blown all the color away. But not this year. It’s still beautiful. Many leaves are blanketing the ground, but enough are still on the trees to make for a wonderful reward for getting outside.

And I have good news regarding my war with vertigo. Wednesday, a week after my last post, I got my latest Covid Booster. The next day, I couldn’t move without throwing up. So I spent the day flat on my back, moving as little as possible. I had the absolute worst case of vertigo that I’ve ever had. I was better the next day and the day after, then it hit again. Monday, I saw a physical therapist who did the Epley maneuver for BPPV (when the canaliths in you inner ear move from their proper place into one or more of your ear canals). BPPV causes your brain to go crazy because it disrupts the means by which your brain figures out where you are in space. 

Normally, the Epley maneuver, when done a PT trained in it, helps nudge the canaliths back into their proper place. It might take more than one nudge, but over time it all gets better. Not this time. I was in the emergency room the next day, again unable to walk without throwing up. I’ve been better and worse since then, and getting very discouraged. Last week, I had one night without the vertigo, but the next day I was staggering around our parking garage unable to walk a straight line to our car. Ugh! 

I had a massage scheduled for Thursday, a rare treat, but one I decided I needed after a month of on again/off again vertigo. When I mentioned the vertigo, my massage therapist said she’d try a technique she’s used with some success for people with vertigo. Voila! I’m better! 48 hours and not a single swirl in my head. (She called it “lymphatic drainage” in case you need to ask for it.)

So: Yesterday, I had a normal day. Today, I’m having a normal day. I can barely remember whatever it is I do on normal days. I think I’ll bake biscotti!

During my long siege of vertigo, the country had an election. The results were not perfect, but my anxiety has decreased a bit. I don’t relish the antics of the Republican controlled House, but at least they can’t block judicial and other appointments that go through the Senate. And Washington’d 3rd district elected a very exciting young woman, Marie Glusenkamp Perez. Even Trump’s announcement didn’t shake me up because it just seems that the wind is out of his sails. 

On the other side of the world, Ukraine is suffering in the dark and cold after Russia aimed at infrastructure throughout the country. Russia can’t seem to get its act together with the actual war – it’s losing ground almost daily. But it can still fire rockets at cities. Think War Crime Trials when this is over, please.

The other good news in the culture wars is that the New York Times actually printed an article discussing concerns about the potential down side of using puberty blockers for young people who want to pursue gender transition. If you’ve had zero interest in the gender/transgender wars for the past five years, the fact that this nicely balanced article is newsworthy may confuse you. To help bring you up to date, just know that the NYT and most other mainstream media have been on the extreme trans-activist side of things. By this, I mean that any doubts about the wisdom of medical transition for teens has been verboten.

Now, however, European countries are facing up to the fact that there is insufficient research regarding puberty blockers and cross-sex hormones for young people. As more de-transitioners go public with their experiences, these countries are rethinking their guidance on treatments. 

Sadly, in the US, this has become a political football. Red states have passed laws prohibiting medical transition for teens; Texas threatens to take kids away if parents approve treatment. California, leading the blue states, proudly proclaims that it’s a sanctuary state for any teens who want “gender affirming” care. Aargh! Keep the bleeping politicians out of this! Let the medical folks sort this out. If more research is needed, do the research, but IMHO, it’s stupid to legislate on the basis of insufficient data. 

Well, folks, I’m just going with the good news this week. We didn’t put election deniers in charge of elections; Trump is deflating, and I’m not worried about him; the NTY wrote a balanced article about a thorny topic; and I got outdoors to enjoy the still stunning fall colors. Hooray!

Stop Fearing Covid?

Is it time to stop fearing Covid? Rip off our masks and get some hugs? No one is really getting sick anymore, so let’s get back to normal.

Wrong. If you’re double-vaxxed and double boosted, you’re not going to die of Covid. You’re unlikely to wind up in a hospital. If you’re fortunate like us, you’ll test negative a week from when you first tested positive. But even mild Covid cases can still bring lingering effects. These might not qualify as Long Covid, but even post-Covid hives (yes, that would be me) can be annoying enough to make me regret our lapse in judgement that led to our trip to the ER and subsequent treatments. 

Hives? Yup. When your immune system ramps up, your body can ramp up masses of red blotches here, there, and everywhere. Extra doses of antihistamines are helping to keep the annoying itching to a level I can live with. But I’m not sure this is my only after-effect. My legs are reluctant to walk; waiting for the elevator is more tiring than it used to be. I’m just not sure I’ve fully recovered. 

I’m old enough that I can never tell why these things are happening. Is my body embarking on the long, slow winding down process that happens when people near 80? Is my mild case of Covid going to speed up that process? Will I be fine in another week? Time will tell.

You’ll see a lot of references to Long Covid if you’re following sites that have been tracking Covid since 2020. But I’m not at all sure that “the economy” has incorporated Long Covid into its planning. I heard an interview with the CEO of United Airlines recently; he said they’ve added 5% to the number of crew members they need to have available to avoid cancelling flights. That increase is due to people taking days off for acute Covid. But what if Long Covid reduces the pool of people who are employable at any point in time? Raising wages won’t make them healthy enough to return to work.

And what about health care? Today I read that our local trauma center is turning away new patients because people who could be discharged to skilled nursing facilities can’t leave because there are not enough beds out there. Is this because of inadequate pay (yes) or Covid (yes) or Long Covid (yes). There are lots of “Help Wanted” signs around, and if you’ve called a clinic and been put on hold, you’ll know there are severe staffing challenges in some sectors. Of course we need to pay more for workers who care for ailing elders. These jobs are often held by immigrants, and immigration has not been opened up after Trump’s restrictions. Why is that? But with or without new immigrants, wages for these workers are simply a disgrace. 

My rant is winding down, but the answer is yes, we still need to avoid Covid. Good luck on that score.